So much good news!!!

Size Comparison (Holding hands with Mommy)

July 30, 2013:

So sorry everyone that the update took so long. There has been so much good news that I've been getting to work with a lot of new groups that are going to help Brady. So I haven't been up to date on my blog.  But here goes the run down. :)

We no longer have a breathing tube down the throat.  Brady took it upon himself to take it out himself. The day after the doctor was talking about if Brady removed it himself they'd try the nasal cannula, but that they would see for another few days. A day later, Brady was sleeping on his tummy, popped himself up and pulled that tube out.  He has been rocking that nasal cannula and is doing well on it. There is talk of going to the next stage in nasal cannulas, a high flow. Then from there there is a normal cannula, then sweet blissful freedom.
We were able to start holding him. It was the most amazing experience that I cannot even put into words. I have held him almost every day since. I know I'm a little selfish, but he likes it too. He loves being held.

He is now in a big boy crib. He has graduated from his giraffe isolette.  He is on the small side for a baby to be in the big boy crib. But they  say he's doing great. He is even wearing preemie baby clothes.

This is his happy face when sucking on his binkie and he has learned a new trick and now smiles in his sleep. :) So adorable. Things are all looking on the up, they are thinking roughly around beginning of September to reattach his intestines back together. :) 8 weeks from his last surgery.e most amazing experience that I cannot even put into words. I have held him almost every day since. I know I'm a little selfish, but he likes it too. He loves being held.

He is now in a big boy crib. He has graduated from his giraffe isolette.  He is on the small side for a baby to be in the big boy crib. But they say he's doing great. He is even wearing preemie baby clothes.  We are even upto 21 ml every 3 hours... and he keeps going up with the milk intake.

This is his happy face when sucking on his binkie and he has learned a new trick and now smiles in his sleep. :) So adorable. Things are all looking on the up, they are thinking roughly around beginning of September to reattach his intestines back together. :) 8 weeks from his last surgery.

 As I've been seeing more and more pregnant women in the last portion of their pregnancy, I feel gipped. I totally wish I could experience all of the uncomfortable sensations. (Though everyone is telling me that it's really not awesome and it's nothing to miss.) I wish I was huge, and getting kicked lots. But then I look at Brady and I can't wish for anything more perfect than the little boy that's right in front of me.  Even though he's not inside, we have stuck this out together as a team.  He is willing to let me know how much he needs his mommy, and I know that it makes me feel better knowing that I am getting better at reading that special little boy. I love it. And I can't wait to take this little stinker home. :)

Let me know if you have any questions or comments. I would love to answer.

Brady is Getting Better Slowly :)

JULY 15, 2013:

So, Brady is doing well. They will be removing the broad spectrum antibiotic! He is still going to have the one for yeast but we are removing things and not adding. I feel like we are making progress in the right direction.  Slowly. He has been a little stinker, but he is so worth it that it's amazing.

Hoping to be getting hold him sometime in the future. The sooner the better, but with everything he has going on, that's a little off limits. I did get to "hold" him in a containing touch to calm him down over the weekend. He seemed to be able to calm down much faster when I talked with him, and hummed to him. He really does enjoy that and stories, but I forgot to take his stories with me today. I'll have to bring one down with me tomorrow.

He is growing like a weed, his hair and finger nails are a dying testament to those words.  He can even have his little bed head moments going on with his hair now. I was joking with Sam that we will have to have him get a haircut before we take him on home. :) I think I'm funny, Sam just shrugged like I'm a strange duck.

A little more about the fundraising events if anyone is interested:

• July 16, 2013 - THIS IS TOMORROW! (Oops I should've done this earlier) The Bake Sale, is going to be held in Ogden, UT. On the Meadowview loop. We would love to see anyone if they would like to donate. :)
• August 2-3, 2013- Yard Sale, being held in Ogden, UT as well. It is  in the large parking lot out front of Del Taco, just off of Wall Ave, and roughly 12th Street.  Could be a great opportunity to find some treasures.

If there are any questions, that I can answer: please let me know. :)

July 12, 2013

JULY 12, 2013:

Hey everyone!! It's so exciting, got to come down for the first time by train. It was an adventure at first, but I made it.  I am liking it a lot. It's a little different than driving for sure. I haven't taken a bus since high school really.  It showed. I got off on the wrong stop, took the wrong bus, walked a long way to a mysterious bus station (I didn't know where it was but I found it in my walking).  Talked to a bunch of people, who helped me to get on the right bus, and I made it to the hospital at about 10.  I was supposed to have arrived around 9. But oh well, just glad that my prayers were answered even if I didn't realize I was praying at the time.

But thank you to everyone who has been helping us out. I know that our family friend has planned a couple of fund raiser events for us, to help us out, as well as there has been an account opened for Brady at Golden West Credit Union; you can walk into any location and ask to donate to the Brady Wright Donation Fund. For those who have been wondering.

Life has been busy but it is going on Brady has had a great week, the last 5 days have only been quite good news. They tried putting his anderson tube (the one that sucks all the gunk out of his stomach) on down drain, he didn't tolerate it very well. So it's back on suction.  They can't start feedings until he begins to tolerate the down drain first.

He has been harassing the nurses by peeing out his catheter, several times. He is now catheter free, I believe he is probably proud of himself. :) He was able to get that bandage removed off of his stomach, and it's starting to heal up nicely.

They are telling me that he's looking good and much better. They are setting goals for him to heal, rest and grow. :) I am starting to get used to the hospital setting and I'm a little terrified for when we are able to take him home, about being able to care for him as well as the nurses have been able to.  I know that I have a lot to learn to make this little guys life as easy as possible. I can't wait.

He is resting right now, and I am getting ready to catch another bus to start the journey on home, but I cannot wait to be back soon.  I love that little boy, watching his little eyes open up when you talk with him, or watching him settle a little bit when you hum, it can definitely make your day very  happy.

Following up on the Surgery

JULY 5, 2013:



Pre operation

Hi everyone!! So surgery went well on Monday, they had to remove a quarter of his right colon.  So for right now his intestine is attached to his stomach, and he will poop into a bag for a little bit. He's got to get bigger before they will attach his intestines all back together. He had a follow up surgery on Wednesday because they found that he had a few abscesses on his intestines that were full of fluid and pus. They did have one of the cultures that they took come back positive for yeast so he will stay on his antibiotics for at least another two weeks.
Wednesday they washed out his gut, and were pleased to see that it was looking good, so they closed him on up. This is his pre and post op pictures.

Pre operation

He is doing well though, and is now on a new ventilator.  They say that healing up from the operation will probably take 7-10 days, and then by that point we can start talking about feeding him.

I know he hasn't eaten anything, since he was a week old. He is now  7 weeks. So they will have to start very slowly with the feedings. But if he eats anything like his dad, I know that he will be chowing down faster than we can blink.  My favorite of these photos is his little "uh-oh spaghettios" face in the pre-op pictures. I think I'm sold.



Post operation

He did get to meet with the rainbow kids- what an awesome organization!  They were great to get to know.  I look forward to continuing to work with them throughout Brady's life. They definitely have thought some of these things through.

Shout out to the amazing family and friends that we have! I really appreciate all that they are willing to do for us. They are so willing to help us out, at the drop of a hat. I love them all.



Pre operation

Thank you everyone that is following the blog. I know that it's been rough trying to follow with the crappy phone updates and that they've been days apart. I will try to do better on updating you all from the laptop preferably. I know that your support and love has been felt, we can definitely tell that there are prayers being said for our little boy and us. Thank you, once again. And we will update soon. Have a happy Holiday! I hope you enjoyed the fourth. Thank you to all of the military personnel that are out there making it so we can stay free. But that is also one thing that the citizens of America are doing as well, making America a place that we all want to remain living.  Bless you all.