A Little Mix of Everything!

August 18, 2013-

Hey everyone! It's crazy to think that here in 2 1/2 short weeks, would be Brady's due date. However, we aren't looking at making it home by that time frame due to some things that have happened. Sorry, it's been so long in the updating process. Let me start from where we left off.  When I left you, we were celebrating Brady's progress which had been holding steady for a little bit and he was able to keep doing super well for around 2 weeks.

August 8th, was the day that the phone call to update me turned into more than just a standard update phone call. They were calling to notify me, and us, that Brady once again had NEC. For those who don't want to read all the way through the other to know what it was again. NEC is what had us transferring down to Primary Children's in such a panic. In severe cases it can cause perforation in the bowels, bleeding, etc, and at the worst death.

At the phone call I was scared and freaking out it a nice way to put it.  I bawling so hard that I later gave myself a migraine. I tried for a half an hour to get a hold of Sam. But it would ring and ring and ring then go to his voice mail. So frustrating!!  So I sent him a text to update him with what was happening and then called my mom. Who of course wasn't able to understand much of what I was saying as I was still bawling and bawling so hard I could barely make out what I was trying to say. Finally, after getting frustrated beyond all else I was able to calm down enough to tell her what was happening. My parents, rocks that I frequently am so very grateful for, took off early and were on there way shortly. Promising that they could get Sam from work if I was still failing to make contact with him.

I called him again, and still nothing. Then my phone was vibrating and it was reading SAM... I hurried and picked up the phone. Sam apologized that the phone was in his work bench and he couldn't hear it over the machinery but what was going on?  He hadn't even read the text message with the explanation. So I broke down and asked if he could get off so that we could go to the hospital.  Mental images of my two boys, with their darkened discolored abdomens, and the extremely terrifying experiences we'd been through before were racking every thought. I picked Sam up shortly and we made a mad dart down to Salt Lake.

When we made it down, Brady was all one color (a normal baby color) he just wasn't looking so hot. He was looking miserable.  They had caught it in time that nothing had perforated, he just had air in his stomach lining. Still not a good thing but nothing like what I had anticipated in my head. So we were given all the information, they difference between his x-rays was showing improvement, he wasn't on any feedings. So we stayed and visited awhile but left feeling relieved though still stressed.

The few days were showing continued improvement and eventually the air in the lining was gone and no longer showing up. It's a mystery as to why he got it but  they scheduled for last Wednesday for a brain MRI to rule out infection in his brain as an option. Gratefully we found no infection, and the contrast they used was able to see better the damage done to his brain due to his brain bleeds.

Wednesday brought another surprise, when he routine eye exam brought another problem to the table.  Brady has had stage 2, zone 2 ROP for awhile (this is a normal disease in the eye cause by being so premature; it can cause blindness as it gets worse.) He was now at a Stage 3, and it was going to be needing surgery for correction.  They talked to us and we signed for the surgery to happen the next day on Thursday.  They were doing a procedure where the laser would go around the eye and hopefully correct the abnormal growth of his blood vessels.  They said he was looking at a 50-70% chance of blindness if no correction was to happen and things were to remain the same. The surgery would take his chances and lower them to 20-25%.

He has underwent his surgery and he is doing well, his eyes are still swollen, red, tender and with some discharge.   But he's currently doing well, and Dad is holding him as I update. Any questions I can answer without any problems, if you leave them in the comments.

Yard Sale

so there has been a change in the yard sale that is taking placing tomorrow and saturday, august 2nd and 3rd. it will be held in the eagles parking lot not del taco. the address is roughly 900 s wall ave ogden, ut 84404. there will be food for sale as well at the items that have been donated for our awesome yard sale.