April 6, 2015-
This update has been way too long in coming. I am so sorry for those that follow and have been awaiting updates. Since last year we have had another little boy, Bryce. He completely adores Brady. Bryce was born on October 7, 2014; and is now 6 months old. Brady is nearly 2 now and has made so many leaps and bounds.
He is walking now and has been discontinued in physical therapy. He is on the low end of normal for speech but is scoring at his actual age for his other skills. Something we were told to not expect. I cannot believe how far this boy has come and I cannot be a more proud mother.
Here are just a few photos for you all, of my boys, and one with Brady's cousin Jordan. They are doing amazing together and we are still working on the whole brotherly love.
If there has been one thing that I have learned through out this whole ordeal it is that Brady has the ability to overcome any trial that is set before him. Before he has even reached the age of two, he is speaking, walking, and no longer has a g-tube (it was removed in July, I believe, of 2014). He is operating not like a premature boy, he is acting like a normal boy with normal wishes and desires.
I would be happy to answer any questions that anyone has, or talk to anyone that is going through a simliar experience. May God bless us all, and continue to watch over us.
Preemie Mom
I'm just a normal mom, that wants to share my own life with friends/family.
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Monday, April 6, 2015
Wednesday, May 21, 2014
Small Update
May 21, 2014-
So I made it back on today!!! Yay! I'm not a total flake when I say I'm going to do something. So our appointments went well. We were given the okay to go ahead and make the switch over to whole milk, with the assistance of pediasure (spelling on that one???). So over the next week I will be starting that process and I am excited to say that we will not miss that Elecare formula smell.
He is doing better than they could have hoped with the fact that other than some outside allergies we aren't finding any food allergies or anything yet. Though he wasn't really thrilled with the fact that he didn't have a nap until close to 1 pm. We had to have some labs drawn up, to see if we will need to be continuing his B12 shots.
And he has made so many major improvements in the last three months for development that the comprehensive care clinic was ecstatic as well. I can't upload any photos right now as my phone died, and now that it's on the charger, Brady thinks he needs it to play his Josh Groban station on pandora so he can sleep. Little stinker.
So I made it back on today!!! Yay! I'm not a total flake when I say I'm going to do something. So our appointments went well. We were given the okay to go ahead and make the switch over to whole milk, with the assistance of pediasure (spelling on that one???). So over the next week I will be starting that process and I am excited to say that we will not miss that Elecare formula smell.
He is doing better than they could have hoped with the fact that other than some outside allergies we aren't finding any food allergies or anything yet. Though he wasn't really thrilled with the fact that he didn't have a nap until close to 1 pm. We had to have some labs drawn up, to see if we will need to be continuing his B12 shots.
And he has made so many major improvements in the last three months for development that the comprehensive care clinic was ecstatic as well. I can't upload any photos right now as my phone died, and now that it's on the charger, Brady thinks he needs it to play his Josh Groban station on pandora so he can sleep. Little stinker.
Tuesday, May 20, 2014
We Made It Through The Year
March 20, 2014-
Can you believe that we made it a whole year with our little Brady bug?! This time last year we weren't certain how long that little boy's life would last. But he is a true fighter, and fought his way from a near death experience to the beautiful little boy he is today. He had so much fun celebrating his birthday, with him... We went to Hogle Zoo, and let him see all the animals. Though truth be told he was much more interested in sight seeing all the other kids that were at the zoo. But he loved it and had fun.
I am trying to keep up with him, he isn't able to walk or crawl yet and you would think that he couldn't possibly be as active to keep a mom busy... but believe me he is. He is doing pretty well though, we are hopefully going to be off any high blood pressure medications by this time next year for him. Tomorrow is our big day, as well, for finding out whether or not the sweet little boy will be able to start whole milk- like a big boy. We are crossing our fingers and hoping very very hard that they will say yes... because if so here in a few months we will be able to say good bye to that g-tube.
We are pleased to announce as well that Brady will be an older brother to a little sister this fall. He is working very hard on being able to walk, or crawl by the time that she will be here. He knows it will help mom out, and I think that he wants to be a big kid and go run and play.
He has been a true miracle to watch throughout the entire year as he has been growing, from a pound and twelve ounces - into this little wonder that is 19 pounds of a happy, energetic little bundle of infant. I can't believe the things that he has had to go through and yet how he is almost always the happiest of people I know. I am so blessed to be this little man's mom.
I will try to hop on tomorrow and update you all, and maybe upload a few pictures and things so that you can enjoy them. My little monster is awake from his short nap and demanding that he be released from the confines of the crib prison. So we will say farewell and we will update you soon. Thanks for the patience.
Sunday, March 2, 2014
The Super Belated, Much Anticipated Update....
March 2, 2013
This update/post is long past being over due. I apologize for the delay. It was easier to update with a sick baby in the hospital, versus the well one attempting to help me write my update postings. Hench, why I'm trying to push this all out in the time that he takes his little nap this afternoon. A lot has happened in the new year with our little Brady Bean.
We have been to several appointments and everyone has told me roughly the same thing. That when you look at the baby on paper and see his history, what you get in person is a totally different story. The little complicated baby that started out at 1 pound 12 ounces, is showing only slightly gross motor delays, but he is flourishing in other departments. He is ahead of his adjusted age in language and fine motor skills.
We are nearing the 17 pound mark, and believe me, when I say, you can feel it in your arms completely. He is a little heavy weight champ, as far as starting as a micro preemie goes. He is 26 inches tall and is growing, going to getting even bigger soon.
Brady has been sleeping in his own room for the past two nights and for the most part I think he likes it. I know that he gets stuck in a position that is uncomfortable and will fall into the sweet dreams once again as soon as you are able to maneuver him out of them. It's pretty cute, although while teething he doesn't sleep well... which has been the last four days now. It's getting better though.
He is almost sitting on his own, he is able to sit unassisted for roughly 10 seconds, and then will sit with minimal assistance at all times. He can roll from belly to back, and the other night accidentally made it from back to belly (we are still working on that there). Though he hates to try and stand, even though I'm a mean mommy and force him to try, we do stretches, and exercise to help build those leg muscles so that one day soon he can be standing.
Food is the way to this baby's heart! He has been devouring whatever baby foods we give him, whether it is rice cereals to squash and peas to bananas and applesauce. He detests his formula with a major passion, and is refusing to take any by mouth anymore. But he will happily take his juice or water from a sippy cup or a bottle. He even likes to try and feed himself with the spoon, and doesn't do that bad of a job at it when he does.
We have begun taking walks and he loves them. Just don't forget the binkie because after about 30 minutes he does get sleep and will freak out if it's not with him. Whoops. Yup, I've done that one on accident. He is truly a miracle of a baby and I cannot wait to see what else he will do to show the world that just because you are born early, that you can still do anything. I never thought we'd be where we are with him, I assumed that the small slim chances of having a normal boy wouldn't be falling into our laps. But now I know that it can happen.
We have so much to be thankful for as family, we would like to send out a very public thank you to the individuals who helped us in many many different ways. Bradley will be receiving his headstone this year, it is being worked on as I type this. My first little warrior, who like Brady, showed me how much more to life there actually is. His trek in life was 8 days, and was the opposite of Brady's. But the lessons that little boy could teach in his 8 days to his young mother, will never cease to astound me.
I am so grateful that my family will be together forever, there is nothing greater than that gift to us. I know many share different beliefs and I respect yours. But the loss of my firstborn, the miracles I have seen with Brady have only strengthened my testimony in the gospel of the Church of Jesus Christ of Latter Day Saints. I am no where near perfect but it teaches me on how to become the better me. There are great resources that you can look up at mormon.org, if you have any questions on the church's stance with anything.
I know that everything in life has a purpose, whether it's joy, happiness, stress, or burden...but those will make us stronger as a whole. We are there to help those that are around us, I'm a personal witness to that help. We have been given so much support and strength, I only hope that I get enough opportunites to give back as much as we received. Thank you!!! We will catch you next time, and update sooner.
This update/post is long past being over due. I apologize for the delay. It was easier to update with a sick baby in the hospital, versus the well one attempting to help me write my update postings. Hench, why I'm trying to push this all out in the time that he takes his little nap this afternoon. A lot has happened in the new year with our little Brady Bean.
We have been to several appointments and everyone has told me roughly the same thing. That when you look at the baby on paper and see his history, what you get in person is a totally different story. The little complicated baby that started out at 1 pound 12 ounces, is showing only slightly gross motor delays, but he is flourishing in other departments. He is ahead of his adjusted age in language and fine motor skills.
We are nearing the 17 pound mark, and believe me, when I say, you can feel it in your arms completely. He is a little heavy weight champ, as far as starting as a micro preemie goes. He is 26 inches tall and is growing, going to getting even bigger soon.
Brady has been sleeping in his own room for the past two nights and for the most part I think he likes it. I know that he gets stuck in a position that is uncomfortable and will fall into the sweet dreams once again as soon as you are able to maneuver him out of them. It's pretty cute, although while teething he doesn't sleep well... which has been the last four days now. It's getting better though.
He is almost sitting on his own, he is able to sit unassisted for roughly 10 seconds, and then will sit with minimal assistance at all times. He can roll from belly to back, and the other night accidentally made it from back to belly (we are still working on that there). Though he hates to try and stand, even though I'm a mean mommy and force him to try, we do stretches, and exercise to help build those leg muscles so that one day soon he can be standing.
Food is the way to this baby's heart! He has been devouring whatever baby foods we give him, whether it is rice cereals to squash and peas to bananas and applesauce. He detests his formula with a major passion, and is refusing to take any by mouth anymore. But he will happily take his juice or water from a sippy cup or a bottle. He even likes to try and feed himself with the spoon, and doesn't do that bad of a job at it when he does.
We have begun taking walks and he loves them. Just don't forget the binkie because after about 30 minutes he does get sleep and will freak out if it's not with him. Whoops. Yup, I've done that one on accident. He is truly a miracle of a baby and I cannot wait to see what else he will do to show the world that just because you are born early, that you can still do anything. I never thought we'd be where we are with him, I assumed that the small slim chances of having a normal boy wouldn't be falling into our laps. But now I know that it can happen.
We have so much to be thankful for as family, we would like to send out a very public thank you to the individuals who helped us in many many different ways. Bradley will be receiving his headstone this year, it is being worked on as I type this. My first little warrior, who like Brady, showed me how much more to life there actually is. His trek in life was 8 days, and was the opposite of Brady's. But the lessons that little boy could teach in his 8 days to his young mother, will never cease to astound me.
I am so grateful that my family will be together forever, there is nothing greater than that gift to us. I know many share different beliefs and I respect yours. But the loss of my firstborn, the miracles I have seen with Brady have only strengthened my testimony in the gospel of the Church of Jesus Christ of Latter Day Saints. I am no where near perfect but it teaches me on how to become the better me. There are great resources that you can look up at mormon.org, if you have any questions on the church's stance with anything.
I know that everything in life has a purpose, whether it's joy, happiness, stress, or burden...but those will make us stronger as a whole. We are there to help those that are around us, I'm a personal witness to that help. We have been given so much support and strength, I only hope that I get enough opportunites to give back as much as we received. Thank you!!! We will catch you next time, and update sooner.
Monday, December 30, 2013
End of the Year
December 30, 2013-
It's almost the new year, and can you believe I'm updating again?! After that long bad spell I'm feeling terrible for the long gap and making everyone wait. I apologize from the deepest chambers of my heart. So everyone has been asking are you loving having him home? The answer to that question is yes, I am loving it. But it is also a stress that I never expected.
I was telling myself that I was so prepared for having a baby... and you know what? I was totally not prepared for this. But I tell you what I'm trying my best... and Brady is growing like a little weed. He weighed in at 12 pounds 12 ounces. We finally made the charts if we look at his adjusted age (How old he would be if he were born on his due date in September). He is in the 5th percentile for weight, 7th for length, and 18th overall if he was born on time. We are making progress, and all that in a month.
We both just got over some stomach bug, and it lasted for a few days for the little man; not something that I would wish on anyone. Surprised me that when I got puked on, it didn't bother me at all as much as I thought it would. I will say that it was warm, and luckily was right after a feeding so that I only got the formula smell. But I was more concerned with if he was okay, than the fact that I was drenched in baby vomit. Poor baby.
I am loving being at home with Brady, as with everything I haven't returned to my night job yet. He has almost learned to roll over. It's funny to watch him get halfway and then realize he can't go due to his arm being positioned oddly and preventing forward progress. He is slowly learning to like tummy time a little bit more and hopefully he will start to learn to use his little arms to push up and hold his head up a little more. He is sitting pretty well too (still needing help, of course), but holding his head up and learning to work on holding himself a little more.
Turning into quite the Mommy's boy though. He just wants to be with me. He refuses to just hang out with Dad. As soon as I leave the room he is screaming because I'm gone. But we are doing well. Christmas was fantastic and fun, he got some new clothes, some toys, teething assisting toys, and a few new books.
Still very grateful for the prayers and thoughts we receive, we can definitely see the impact of them in our lives. Truly thankful for everything. We will keep you all updated as Brady continues to grow. Thanks for bearing with us, throughout the slow updating.
Wishing you all a Happy New Year!! As we start 2014, we can all think of all the great miracles we've seen this last year. Who knows what the new year will bring as we strive to make some New Year's goals, I know that some of mine will be including weight loss. I am finally back under the 200 pound mark and I am aiming to get back down to 130 hopefully. Though truthfully I think I would even be content at 150. :) Well Wishes, and we will see you all next year!
It's almost the new year, and can you believe I'm updating again?! After that long bad spell I'm feeling terrible for the long gap and making everyone wait. I apologize from the deepest chambers of my heart. So everyone has been asking are you loving having him home? The answer to that question is yes, I am loving it. But it is also a stress that I never expected.
I was telling myself that I was so prepared for having a baby... and you know what? I was totally not prepared for this. But I tell you what I'm trying my best... and Brady is growing like a little weed. He weighed in at 12 pounds 12 ounces. We finally made the charts if we look at his adjusted age (How old he would be if he were born on his due date in September). He is in the 5th percentile for weight, 7th for length, and 18th overall if he was born on time. We are making progress, and all that in a month.
We both just got over some stomach bug, and it lasted for a few days for the little man; not something that I would wish on anyone. Surprised me that when I got puked on, it didn't bother me at all as much as I thought it would. I will say that it was warm, and luckily was right after a feeding so that I only got the formula smell. But I was more concerned with if he was okay, than the fact that I was drenched in baby vomit. Poor baby.
I am loving being at home with Brady, as with everything I haven't returned to my night job yet. He has almost learned to roll over. It's funny to watch him get halfway and then realize he can't go due to his arm being positioned oddly and preventing forward progress. He is slowly learning to like tummy time a little bit more and hopefully he will start to learn to use his little arms to push up and hold his head up a little more. He is sitting pretty well too (still needing help, of course), but holding his head up and learning to work on holding himself a little more.
Turning into quite the Mommy's boy though. He just wants to be with me. He refuses to just hang out with Dad. As soon as I leave the room he is screaming because I'm gone. But we are doing well. Christmas was fantastic and fun, he got some new clothes, some toys, teething assisting toys, and a few new books.
Still very grateful for the prayers and thoughts we receive, we can definitely see the impact of them in our lives. Truly thankful for everything. We will keep you all updated as Brady continues to grow. Thanks for bearing with us, throughout the slow updating.
Wishing you all a Happy New Year!! As we start 2014, we can all think of all the great miracles we've seen this last year. Who knows what the new year will bring as we strive to make some New Year's goals, I know that some of mine will be including weight loss. I am finally back under the 200 pound mark and I am aiming to get back down to 130 hopefully. Though truthfully I think I would even be content at 150. :) Well Wishes, and we will see you all next year!
Wednesday, December 18, 2013
HE has made it HOME!!!!!
December 18, 2013-
I'm so sorry everyone for the delay. We have had so much good news. Brady was able to be discharged on November 25th, and was able to be home for the holidays!! He has been a charming little love. But it's been so hard to adjust to having a baby at home now. It's been crazy.
He is now 12 pounds 2 ounces, and will take roughly 3/4-1 ounce by mouth with his bottle when he is allowed to try (which is roughly 2 times a day). He has been doing so well, and so I'm going to include some pictures.
Brady finally got a button g-tube and was able to for the first time spend some time on his tummy. If it will let me I'll add the video of him. :)
I can't help but think about how grateful I am for my sons, and my husband. I know it's hard to believe for me how my little Brady has made it from 1 pound 12 ounces, with so many complications to the amazing little boy I put to sleep each night. Who smiles at me, and giggles when we play together. The difference between my two boys situations within the first few weeks of life, could not have made a larger impact on my life.
I will be able to update more frequently now that things are slowly calming down, the holidays are almost over. He is trying to roll over, and even though he sits pretty well he still needs some assistance. :) Can't say much more other than I am the happiest woman on the planet.
I'm so sorry everyone for the delay. We have had so much good news. Brady was able to be discharged on November 25th, and was able to be home for the holidays!! He has been a charming little love. But it's been so hard to adjust to having a baby at home now. It's been crazy.
He is now 12 pounds 2 ounces, and will take roughly 3/4-1 ounce by mouth with his bottle when he is allowed to try (which is roughly 2 times a day). He has been doing so well, and so I'm going to include some pictures.
I can't help but think about how grateful I am for my sons, and my husband. I know it's hard to believe for me how my little Brady has made it from 1 pound 12 ounces, with so many complications to the amazing little boy I put to sleep each night. Who smiles at me, and giggles when we play together. The difference between my two boys situations within the first few weeks of life, could not have made a larger impact on my life.
I will be able to update more frequently now that things are slowly calming down, the holidays are almost over. He is trying to roll over, and even though he sits pretty well he still needs some assistance. :) Can't say much more other than I am the happiest woman on the planet.
Thursday, October 24, 2013
Post Surgery!!
October 24, 2013-
So surgery went and happened!! And then I felt like the worst mom on the planet afterwards. I'd been so excited and he was so miserable, worse than I've seen him in months and months. So I told myself that I earned the bad mom award, for actually being excited about something that could cause my little Brady Bug pain.
I know it had to happen for him to get better, but I seriously was staring at a Mr. Michellin Man baby. (You know that giant white marshmellow-y looking tire guy, yeah he looked like a mini one) He was so swollen, and miserable. The week following surgery I couldn't help but call like 3-4 times a day, along with all of the updates from the nurse practitioners. We had to go back onto the osilator ventilator that is the model t of vents, not that it's ancient but it shakes their little bodies.
Within the week after surgery we did go fairly quickly and as of today, we are back down to 1.0 liters of oxygen flow. He just started feedings with a bottle, twice a shift, with an hour's worth of food as of last night. They are feeding him the rest of what he doesn't take by mouth through his g-tube and we just went up on feedings. I think if I remember correctly we are at 5 mL an hour. He is looking great! No more swelling, and is looking like a normal baby. He even recently graduated from the heater bed back to the big boy crib.
He is loving being able to move again. :) He searches for the source of the voices and loves stories, conversations, and songs. The nurses have been loving getting to play with him, and he gets upset when play time is interrupted. He is so alert, and attentive it's crazy to think that he may miss milestones eventually when we start to hit them.
And before I forget the promised photos of Brady to update:
So surgery went and happened!! And then I felt like the worst mom on the planet afterwards. I'd been so excited and he was so miserable, worse than I've seen him in months and months. So I told myself that I earned the bad mom award, for actually being excited about something that could cause my little Brady Bug pain.
I know it had to happen for him to get better, but I seriously was staring at a Mr. Michellin Man baby. (You know that giant white marshmellow-y looking tire guy, yeah he looked like a mini one) He was so swollen, and miserable. The week following surgery I couldn't help but call like 3-4 times a day, along with all of the updates from the nurse practitioners. We had to go back onto the osilator ventilator that is the model t of vents, not that it's ancient but it shakes their little bodies.
Within the week after surgery we did go fairly quickly and as of today, we are back down to 1.0 liters of oxygen flow. He just started feedings with a bottle, twice a shift, with an hour's worth of food as of last night. They are feeding him the rest of what he doesn't take by mouth through his g-tube and we just went up on feedings. I think if I remember correctly we are at 5 mL an hour. He is looking great! No more swelling, and is looking like a normal baby. He even recently graduated from the heater bed back to the big boy crib.
He is loving being able to move again. :) He searches for the source of the voices and loves stories, conversations, and songs. The nurses have been loving getting to play with him, and he gets upset when play time is interrupted. He is so alert, and attentive it's crazy to think that he may miss milestones eventually when we start to hit them.
And before I forget the promised photos of Brady to update:
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| Nasal cannula trial before surgery - we were seeing if he could breathe without it, and he made it for an hour. |
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| Nasal cannula trial before surgery - we were seeing if he could breathe without it, and he made it for an hour. |
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| Nasal cannula trial before surgery - we were seeing if he could breathe without it, and he made it for an hour. |
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| Day of surgery- right after. Daddy snapped this picture. It lasted 4.5 hours, and then mom and dad had to wait for about another hour and a half before they could see me. Mom wasn't happy about that. |
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| Mom's favorite face. The "o" face, he purses his lips in the o shape and then looks around for a bit, this was the first and only time she's been able to catch it on camera. |
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| My reaction to mom relaying dad's message, "I love you. Even though you are a monster." Because I'm wearing my monster pjs. The monster is on the butt, and the feet. |
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| Day two after surgery- Michellin Man baby... look how majorly swollen. |
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| About a week after surgery, the swelling is almost all gone and I'm feeling better. |
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| Meh... I'm hanging out with mom and enjoying some camera time during our chit chat. |
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| Daddy was clever enough to snatch this photo, it's so precious. |
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