September 15, 2013
Hey everyone, so I'm so sorry that everything is taking so long. I meant to update before, but I started up working two jobs to help keep my mind off of things. Even though they are part time, they keep me running around a lot.
But as to start at where we left off. We recovered from the NEC. We found out that it was a lot of air in the lining of his stomach, and that it was easily treatable with heavy bowel rest (meaning no food) and antibiotics. It cleared up and after two long weeks of antibiotics, Brady was starting some very very tiny feedings.
We did well and increased feedings so stinking slow. But we were so excited to be increasing that slowly. We requested it, so we can hopefully avoid any more possiblities of NEC. :)
We did have a "stool out" - were his body decided that it didn't want to process things and just pooped it all out basically. So we are finally back to full feedings. But we are looking at a couple complications.
Brady has super high blood pressure, which they say is from his being so early and his mild lung disease. The mixture they are seeing more and more that it causes high blood pressure when the babies are coming to their term date. But with the medication that they have him on he is doing well and they have it under control.
They just removed his PICC line since he has grown and it was now in a place that it wouldn't be able to be used if they did need to use again. So we are slowly losing lines and hoping that we won't have to be having them back.
His brain bleeds are remaining consistent and are unchanged. His eyes however after having two laser surgeries are now are now back to regressing ROP and are stage 2, zone 2. A big improvement from when we hit the stage 3, zone 2. He still is getting consistent weekly eye exams, unless they are needed more frequently.
We have been moved to a new team that is working with us to hopefully be able to get Brady home as soon as possible and we are looking to hopefully be having him home by Thanksgiving. Merely 6 months after being born. 2 months after his due date. He is currently doing well and we hope that will remain, he currently weighs in at 6 lbs 4.5 oz and is 18 1/2" long.
We did celebrate Bradley's birthday, and Brady's due date. It's good to know that our family is together for eternity and that no matter what my boys will be able to know one another even if they cannot physically be playing side by side in the flesh and blood. It is good to know that no matter what happens family will always prevail.
I will always be grateful not only for my husband and my sons. But for my parents, for their goodness and their willingness to be there through thick and thin. They are amazing and will always be the highlight of my memories. I apologize for all of the things that I have done that has ever brought shame, or blemish onto their family name. They should be treated in the highest regard. My siblings, whether they know it or not have helped me with their examples and their support. My in-laws have also been diligent in supporting us, and showing love.
Family is truly the one thing that you will always have. That is truly why I know without a shadow of a doubt that is why it so important to keep them central in our lives. Eternal families exist. Truly, I don't want to get all religion-y on my blog, but seriously ask me about it sometime and I can tell you about it.
Thank you everyone for your support and I'm sorry that it took so long to update. We love all you are willing to do to help us in our time of need. I will be updating again soon with photos.
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