May 21, 2014-
So I made it back on today!!! Yay! I'm not a total flake when I say I'm going to do something. So our appointments went well. We were given the okay to go ahead and make the switch over to whole milk, with the assistance of pediasure (spelling on that one???). So over the next week I will be starting that process and I am excited to say that we will not miss that Elecare formula smell.
He is doing better than they could have hoped with the fact that other than some outside allergies we aren't finding any food allergies or anything yet. Though he wasn't really thrilled with the fact that he didn't have a nap until close to 1 pm. We had to have some labs drawn up, to see if we will need to be continuing his B12 shots.
And he has made so many major improvements in the last three months for development that the comprehensive care clinic was ecstatic as well. I can't upload any photos right now as my phone died, and now that it's on the charger, Brady thinks he needs it to play his Josh Groban station on pandora so he can sleep. Little stinker.
Wednesday, May 21, 2014
Tuesday, May 20, 2014
We Made It Through The Year
March 20, 2014-
Can you believe that we made it a whole year with our little Brady bug?! This time last year we weren't certain how long that little boy's life would last. But he is a true fighter, and fought his way from a near death experience to the beautiful little boy he is today. He had so much fun celebrating his birthday, with him... We went to Hogle Zoo, and let him see all the animals. Though truth be told he was much more interested in sight seeing all the other kids that were at the zoo. But he loved it and had fun.
I am trying to keep up with him, he isn't able to walk or crawl yet and you would think that he couldn't possibly be as active to keep a mom busy... but believe me he is. He is doing pretty well though, we are hopefully going to be off any high blood pressure medications by this time next year for him. Tomorrow is our big day, as well, for finding out whether or not the sweet little boy will be able to start whole milk- like a big boy. We are crossing our fingers and hoping very very hard that they will say yes... because if so here in a few months we will be able to say good bye to that g-tube.
We are pleased to announce as well that Brady will be an older brother to a little sister this fall. He is working very hard on being able to walk, or crawl by the time that she will be here. He knows it will help mom out, and I think that he wants to be a big kid and go run and play.
He has been a true miracle to watch throughout the entire year as he has been growing, from a pound and twelve ounces - into this little wonder that is 19 pounds of a happy, energetic little bundle of infant. I can't believe the things that he has had to go through and yet how he is almost always the happiest of people I know. I am so blessed to be this little man's mom.
I will try to hop on tomorrow and update you all, and maybe upload a few pictures and things so that you can enjoy them. My little monster is awake from his short nap and demanding that he be released from the confines of the crib prison. So we will say farewell and we will update you soon. Thanks for the patience.
Sunday, March 2, 2014
The Super Belated, Much Anticipated Update....
March 2, 2013
This update/post is long past being over due. I apologize for the delay. It was easier to update with a sick baby in the hospital, versus the well one attempting to help me write my update postings. Hench, why I'm trying to push this all out in the time that he takes his little nap this afternoon. A lot has happened in the new year with our little Brady Bean.
We have been to several appointments and everyone has told me roughly the same thing. That when you look at the baby on paper and see his history, what you get in person is a totally different story. The little complicated baby that started out at 1 pound 12 ounces, is showing only slightly gross motor delays, but he is flourishing in other departments. He is ahead of his adjusted age in language and fine motor skills.
We are nearing the 17 pound mark, and believe me, when I say, you can feel it in your arms completely. He is a little heavy weight champ, as far as starting as a micro preemie goes. He is 26 inches tall and is growing, going to getting even bigger soon.
Brady has been sleeping in his own room for the past two nights and for the most part I think he likes it. I know that he gets stuck in a position that is uncomfortable and will fall into the sweet dreams once again as soon as you are able to maneuver him out of them. It's pretty cute, although while teething he doesn't sleep well... which has been the last four days now. It's getting better though.
He is almost sitting on his own, he is able to sit unassisted for roughly 10 seconds, and then will sit with minimal assistance at all times. He can roll from belly to back, and the other night accidentally made it from back to belly (we are still working on that there). Though he hates to try and stand, even though I'm a mean mommy and force him to try, we do stretches, and exercise to help build those leg muscles so that one day soon he can be standing.
Food is the way to this baby's heart! He has been devouring whatever baby foods we give him, whether it is rice cereals to squash and peas to bananas and applesauce. He detests his formula with a major passion, and is refusing to take any by mouth anymore. But he will happily take his juice or water from a sippy cup or a bottle. He even likes to try and feed himself with the spoon, and doesn't do that bad of a job at it when he does.
We have begun taking walks and he loves them. Just don't forget the binkie because after about 30 minutes he does get sleep and will freak out if it's not with him. Whoops. Yup, I've done that one on accident. He is truly a miracle of a baby and I cannot wait to see what else he will do to show the world that just because you are born early, that you can still do anything. I never thought we'd be where we are with him, I assumed that the small slim chances of having a normal boy wouldn't be falling into our laps. But now I know that it can happen.
We have so much to be thankful for as family, we would like to send out a very public thank you to the individuals who helped us in many many different ways. Bradley will be receiving his headstone this year, it is being worked on as I type this. My first little warrior, who like Brady, showed me how much more to life there actually is. His trek in life was 8 days, and was the opposite of Brady's. But the lessons that little boy could teach in his 8 days to his young mother, will never cease to astound me.
I am so grateful that my family will be together forever, there is nothing greater than that gift to us. I know many share different beliefs and I respect yours. But the loss of my firstborn, the miracles I have seen with Brady have only strengthened my testimony in the gospel of the Church of Jesus Christ of Latter Day Saints. I am no where near perfect but it teaches me on how to become the better me. There are great resources that you can look up at mormon.org, if you have any questions on the church's stance with anything.
I know that everything in life has a purpose, whether it's joy, happiness, stress, or burden...but those will make us stronger as a whole. We are there to help those that are around us, I'm a personal witness to that help. We have been given so much support and strength, I only hope that I get enough opportunites to give back as much as we received. Thank you!!! We will catch you next time, and update sooner.
This update/post is long past being over due. I apologize for the delay. It was easier to update with a sick baby in the hospital, versus the well one attempting to help me write my update postings. Hench, why I'm trying to push this all out in the time that he takes his little nap this afternoon. A lot has happened in the new year with our little Brady Bean.
We have been to several appointments and everyone has told me roughly the same thing. That when you look at the baby on paper and see his history, what you get in person is a totally different story. The little complicated baby that started out at 1 pound 12 ounces, is showing only slightly gross motor delays, but he is flourishing in other departments. He is ahead of his adjusted age in language and fine motor skills.
We are nearing the 17 pound mark, and believe me, when I say, you can feel it in your arms completely. He is a little heavy weight champ, as far as starting as a micro preemie goes. He is 26 inches tall and is growing, going to getting even bigger soon.
Brady has been sleeping in his own room for the past two nights and for the most part I think he likes it. I know that he gets stuck in a position that is uncomfortable and will fall into the sweet dreams once again as soon as you are able to maneuver him out of them. It's pretty cute, although while teething he doesn't sleep well... which has been the last four days now. It's getting better though.
He is almost sitting on his own, he is able to sit unassisted for roughly 10 seconds, and then will sit with minimal assistance at all times. He can roll from belly to back, and the other night accidentally made it from back to belly (we are still working on that there). Though he hates to try and stand, even though I'm a mean mommy and force him to try, we do stretches, and exercise to help build those leg muscles so that one day soon he can be standing.
Food is the way to this baby's heart! He has been devouring whatever baby foods we give him, whether it is rice cereals to squash and peas to bananas and applesauce. He detests his formula with a major passion, and is refusing to take any by mouth anymore. But he will happily take his juice or water from a sippy cup or a bottle. He even likes to try and feed himself with the spoon, and doesn't do that bad of a job at it when he does.
We have begun taking walks and he loves them. Just don't forget the binkie because after about 30 minutes he does get sleep and will freak out if it's not with him. Whoops. Yup, I've done that one on accident. He is truly a miracle of a baby and I cannot wait to see what else he will do to show the world that just because you are born early, that you can still do anything. I never thought we'd be where we are with him, I assumed that the small slim chances of having a normal boy wouldn't be falling into our laps. But now I know that it can happen.
We have so much to be thankful for as family, we would like to send out a very public thank you to the individuals who helped us in many many different ways. Bradley will be receiving his headstone this year, it is being worked on as I type this. My first little warrior, who like Brady, showed me how much more to life there actually is. His trek in life was 8 days, and was the opposite of Brady's. But the lessons that little boy could teach in his 8 days to his young mother, will never cease to astound me.
I am so grateful that my family will be together forever, there is nothing greater than that gift to us. I know many share different beliefs and I respect yours. But the loss of my firstborn, the miracles I have seen with Brady have only strengthened my testimony in the gospel of the Church of Jesus Christ of Latter Day Saints. I am no where near perfect but it teaches me on how to become the better me. There are great resources that you can look up at mormon.org, if you have any questions on the church's stance with anything.
I know that everything in life has a purpose, whether it's joy, happiness, stress, or burden...but those will make us stronger as a whole. We are there to help those that are around us, I'm a personal witness to that help. We have been given so much support and strength, I only hope that I get enough opportunites to give back as much as we received. Thank you!!! We will catch you next time, and update sooner.
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